Living with Genetic Disorders

Gr 7 Up—Presented by a young host, this program offers substantial narrative from four young adults affected by genetic disorders as well as from a genetic counselor. In addition, animated models demonstrate the genetic causes of disease. Four disorders are covered: cystic fibrosis, sickle cell disease, hemophilia, and Huntington's disease. Each of the afflicted people tells the story of how their condition was diagnosed and the treatment they have received. The young woman who has a genetic disposition for Huntington's disease is asymptomatic now, but is vigilant about planning for the future. The individual with cystic fibrosis had a lung transplant, which has improved her quality of life but has not eradicated the disease completely. Each speaker has learned how to lead a fulfilling life. The guide is chock-full of useful resources.—Ann Weber, Bellarmine College Prep., San Jose, CA